January 2017 Newsletter
January 2017 OCC Newsletter
Report on Presentation of OCC Pre-Budget Submission 2017 on January 18th – Queen’s Park – submitted by Jacquie Micallef, Co-Chair, Research & Advocacy Committee
I’m happy to report that the pre-budget presentation went really well today. We received comments and questions from John Vanthof, MPP, Temiskaming- Cochrane (NDP). A process change was implemented last fall wherein only one party is to ask questions of each presentation – and this rotates.
Mr. Vanthof confirmed his party’s commitment to Bill 66. He felt that everything we presented he could relate to because his mother has dementia. He talked about how stressful it was when they tried to provide care for her at home and agreed that EI coverage should be broadened to include people caring for those who are not near death. He mentioned how many families he’s met in the same situation, but who do not have the same level of financial stability that he has. He also asked about concerns with CCAC care. Lauren Rettinger reinforced the need for more consistency and flexibility within home care.
Overall, our messages were very well received. I’ll send out a link to the transcript when available.
(See OCC Pre-Budget Submission 2017 – attached)
I Am Participating on the Ontario TVO's, The Agenda program – submitted by Denyse Lynch, caregiver
Patients Canada www.patientscanada.com , a patients’ support & education organization I joined in 2011, and in which I’ve been active the last 6 years, recently referred me to an opportunity - to guest on a panel discussion hosted by Steve Paikin of TVO’s The Agenda, which will air at 8 p.m. this coming Wednesday evening, February 1st.
Called Patients First, TVO has been actively pursuing our health care system’s challenges with health care delivery across the Health Care system’s elements i.e. family doctors; ER; Hospital admittance, stays; medical tests; specialists; surgeries; treatment delivery; Home care; Long Term Care; Palliative Care etc. These are most of the elements that comprise our health system. While Ontario & across Canada we are extremely fortunate to have some of the very best "individual health providers" across all our Health system’s many elements, the dissatisfaction among these 3 constituent bodies (who pay for the system) comes significantly, from the lack of effective planning, organizing, coordination, integration of these. As a result, our health care providers, across the various health care system’s elements deliver health care in silos… which we all (health providers, patients, caregivers) experience with frustration in the barriers, gaps and difficulty in navigating the system.
It is complex, but I believe we can greatly improve the system if "we are all on the same "channel" sharing, and truly understanding each others’ perspectives and defining where the blockages exist within the system. Then we are in a position to work together to create, implement and monitor solutions for their effectiveness, making adjustments as required.
Wednesday’s program will comprise 2 parts – first, an interview with an individual who will share her "voluminous" patient experiences. The second half of the program in which I’ll participate will consist of a panel with people with different perspectives – an RN, a caregiver-me and I believe some others, though the producer couldn’t confirm the other panel members.
Hope you’ll have an opportunity to watch on Wednesday night. If not you can view the episode on the internet as follows:
Each evening's program should already be available as a downloadable video and audio podcast on iTunes by about 9 p.m. on the evening of the broadcast. The video version will be available for about 10 days. The audio version will be available for about a month.. Our website will also have the program available to stream by the next day and can always be viewed on our website afterwards. We also have our own YouTube channel where you can watch your interview along with our other programsI feel very strongly that we all need to keep spreading and raising awareness and education among all Ontario constituents who have yet to experience the physical, mental and
financial barriers and gaps as a result of our silo-ed health care services. The Agenda is providing a great service in promoting this awareness, education.
Patients with chronic conditions and their care givers have many years of lived experiences with the barriers, gaps, obstacles caused by the lack of coordination, integration and communication that has been the norm and characterized our Health Care System. Those who have not lived these experiences with acute, short-term experiences find it hard to imagine the impact we experience. Yet our growing, aging population will only add to the challenges in and costs for the system. The more we can spread this awareness and education, among all constituents, the more we, all, along with our health providers, researchers, policy makers, can collaborate in working together towards quality improvements.
News from members:
Antonella Scali has asked that all OCC members consider telling caregivers they know about the upcoming first webinar being presented by the Family Caregiver Community of Interest (COI) on February 28th – "Breaking Barriers". A flyer is attached to this newsletter.
Sandi Robinson sent in a link to an interesting article about how doctors in BC are supporting family caregivers. See: https://www.doctorsofbc.ca/sites/default/files/doctorsofbc_supporting_family_caregivers_web-ready.pdf
Lisa Levin is pleased to announce that Toronto City Councillor James Pasternak has become a champion of the City Council declaring the first Tuesday in April Family Caregiver Day. This motion will be brought to Council on Tuesday, January 31st. See Mr. Pasternak’s letter in support of this at:
Many OCC members have expressed interest in being involved in some way in celebrating the first Family Caregiver Day in Ontario in April. The Awareness & Communications committee is working now on a tool-kit to assist members with promoting this exciting initiative. More news to follow soon!
Saint Elizabeth is holding a special Student Video Contest designed to capture caregiving stories of young caregivers. This contest is open until March 10th. Please see attached flyer.
OCC would like to congratulate Mississauga-Halton CCAC upon their winning two International Association of Business Communications (IABC) Silver leaf Awards for their Faces of Care advocacy initiative and their My Story patient information package. Both have been nationally recognized.
Welcome new members:
Naomi Zeigler and Lisa Brousseau, Sprint Senior Care, Toronto
Margit Obtresal, Retire-at-Home, Richmond Hill
The Change Foundation Announces Successful Recipients of ‘Changing Care’ Awards:
On January 18th, The Change Foundation announced four organizations that have been selected to receive these awards. OCC is pleased that St. Joseph’s Health Care in London is one of the successful applicants and that they had asked for OCC’s
Support of their project. We have also reached out to the other award winners to offer our congratulations and support. All of these projects will enhance the caregiving experience.
To read more about the winners, please go to www.changefoundation.ca/changing-care.
We hope to keep readers of this newsletter updated on the progress of each of the projects in the coming year.
Upcoming OCC meetings:
Some of you have been asking about the dates and locations of our next General Members’ meeting and the next OCC Steering Committee meeting. We apologize for the delay but will be announcing these dates in the next week or two. We anticipate the next General Members’ meeting will be sometime in late March with a Steering Committee meeting to be held before that.
Deadline for next newsletter submissions:
Thursday, February 23rd.
Disclaimer: This newsletter is for information purposes only.